Tuesday, November 16, 2010

Snapshot

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Life
is like
photography;
we use
the negatives
to
  develop.


...I saw this quote and it clicked for me. 
Perception is everything.
When the going gets tough, the tough get creative.
My wish for you:
Crop out the ugliness.
Focus your lens to create beauty and wonder.

Who says Sensory Diets have to be boring and sterile? 
G the spinnin' machine on a gorgeous fall day




My 3 incredible kids....the positives that color my world.


Saturday, November 13, 2010

Adult Onset...Whatchamacallit


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M.C. Escher, Mind-Bending Visualist Extraordinaire

Recently I was chatting with a friend, I can't remember who or when, which will make more sense in a moment.  She was briefly interrupted by her ADHD ASD child, and she puzzled for a few moments to get back to her subject matter.  She said that she feels like she has ADD (Attention Deficit Disorder) sometimes.  I told her I love her.  OK, now I remember who it was, which is good, since I professed my love and all. 

Mommy ADD: I''ve been claiming that for a few years.  Oops...irritated comments, smirks or puzzled looks remind me that I've forgotten something once again.   
Oh darn, it's flying again!
Darn, I'm flying my freak flag again.  Sigh.  I believe that having a child with special needs makes parents prone to ADD (maybe just kids in general).   In fact, I think we're prone to many disorders, short-term, temporary, call it what you want.   I'd like to see a study on that...hold on, let me google that...OCD.  In my case, I'm constantly on alert with my son, who is always on the move and an accomplished escape artist.  I must keep 2-3 steps ahead of him mentally to foresee where he'll go and predict what he'll do.  So staying on subject in a conversation - merely completing a sentence - is not a priority.  His sensory-induced fight-or-flight response becomes mine as well....SPD.  My eyes are always on the prize, I'm in panic mode....ADHD.  I feel horribly rude when trying to listen to a friend while my eyes dart rapidly, punctuated by sharp intakes of breath, accelerating to calls, warnings, and many times a running panic and battle.  It's a wonder I catch any conversation at all, because when I do indulge, I feel like I'm endangering my son by not keeping total focus on him.  I endure mini nervous breakdowns several times a day...Panic Disorder...Anxiety Disorder....Social Phobia....  

At the end of each day when the kids are asleep, which is not always an easy feat for ASD kids; I crumble into Post Traumatic Stress Disorder (PTSD), reliving the frightening moments of the day, vivid flashbacks playing out, letting my fears of what may have happened bubble over.  Woulda coulda shoulda...OCD rearing its ugly tentacles again.  Sometimes my husband is unfortunate enough to still be awake.  I may be worked up and ready to vent instead of exhausted and ready to escape.  Pity the poor patient man.   While he's relaxing and trying to chill/unwind before bed after a stressful 12-15 hour day, I unload.  How does he keep from getting worked up too?  He works hard to counterbalance my emotional purging: anger, guilt, fright, pride, delight, wonder.  I struggle to differentiate his calm from detachment. 


Gotta google "Google Addiction"
Is Google listed
in the dictionary as a noun AND a verb?

Or, I may jump on the computer to email or Facebook Escape-book.  I try to read at least 3 hours per day from my many sources of ASD materials.  I usually have at least 3 books from the library, a couple from friends, dozens of articles bookmarked on my desktop, or yahoo groups on several areas that I'm researching.  If I don't keep myself organized and on task, this research spirals out of control in a quick minute.  Authors, theories, programs, tests, sources, opinions, referrals, suggestions, warnings - keeping all of these topics straight can be a full load on a clear mind, let alone an exhausted one.  I often feel like I'm jumping all over the place in my research.  I've heard other special needs parents say that they can't seem to finish a book either.  I get curious about something that I'm reading and then search it out in another arena, "Hmmmm..let's see if there's current info or studies on that....Google".   If Google had frequent clicker points, I'd have some amazing trips in my bank.  The internet - with our immediate gratification society - promotes jumping around in subject matter.  Click here, sidebar suggestions, google ads, pop-ups litter our intellectual environment.  It's a wonder anyone ever has a complete thought.

 So I stay awake too late - researching, stressing, decompressing, reading or writing.  My attention flows between worries about my children, money, marriage, my miles-long list of must-dos, and friends/family who are going through rough times....Paranoia?  I pray, I worry, I cry, I laugh.  Sometimes all at once....Mania?  Depression?  Bi-Polar?  I need to cry, I love to laugh.  I try to find one thing funny or positive per day.  Usually it's several times an hour, some days I'm grasping to come up with just one.  That's life at DSM 4 Acronym Ave..

M. C. Escher
OK, so what was I talking about again?  Oh yeah, Mommy ADD.  Ha!  I figure I'm doing OK if I can keep my family's names straight, remember what day it is and keep schedules flowing, remember to defrost the chicken for dinner to keep stomachs full and gain/get my message across in necessary conversations, correspondence and business matters. 

Who am I and What have I done with myself?

So, if I forget what I was talking about, forget how I know someone, forget names, forget events, forget times, dates, places, or any other factoid that you may be expecting me to have at my immediate command; I apologize now.   For always, forever.  Let's call it my get-out-of excuses apology card.  No expiration date.  Please don't judge me or get irritated.  Or worse, think that I don't care.  I so want to be there for everyone, in the moment.  Instead I'm relegated to quick email/Facebook comments in between kids activities and projects...thank goodness for that or I'd be soooooo lonely.  I'm not senile (though closing in on 50), but I may be losing it.   I'm doing the best that I can to keep my family together, running smoothly; and ideally laughing, loving and ready for the world.  My priorities are right there and nowhere else.  I never, ever-ever-ever-ever forget to hug my kids and let them know how much they are cherished.  My commitment changed with an "I do", 2 beautiful babies with adoption certificates and a bio-baby miracle.  Nothing prepared me for the challenges I'm facing, and I've not lived a sheltered nor simple life - au contraire!  When I have time and trust, I have stories!   I'm not crazy, but I've seen it aplenty.  Ann Arbor, Art School, Advertising - those were the stable moments.  I hope someday to be able to socialize often and freely again, relaxed.  If that is not to be in my future of caretaker, I was blessed with that luxury for many years.  If I completely lose sight or forget about those fun carefree times, I have friends and photos to remind me.  You'll remember me, right?  We can wear name tags...


Friday, October 29, 2010

Haunting Melodies


I'll get you my pretty, and your little dog too - cackle cackle!
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A few tunes
to get you
howling
and screeching
for Halloween...


No gore,
just music
and a bit of fun.




































Punk Halloween Songs
http://punkmusic.about.com/od/punk101/tp/horrorpunk.htm

Metal Halloween Songs
http://hardrockhideout.com/2007/10/29/top-ten-metal-songs-for-halloween/

http://the-trukstop.com/articles/2008/heavy_metal_halloween.html

Oldies Halloween Songs
http://www.popculturemadness.com/Music/Halloween-Music.html

Country Halloween Songs
http://www.associatedcontent.com/article/5897850/halloween_party_songs_country_style.html

What's your favorite Halloween song ?  Please share.

Friday, October 22, 2010

Happy Swinging Halloween!

Homage to Halloween...
Caution: 
May cause excess swaying and bopping. 

Love this band!  Love the candy too!  :}

Squirrel Nut Zippers: Hell

Hell
Uploaded by RavenTV. - See the latest featured music videos.

The Band:
http://snzippers.com/

The Candy:
http://www.necco.com/OurProducts/Products.asp?ProductSubCategoryID=3
All gone!
The End


3491

Tuesday, October 19, 2010

Up, down, round and round

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I saw this wise quote today:
If you don't look up to them, don't let them look down on you. 

I'd add:
If they look down on you, don't look up to them!


G would add:
Just look sideways like I do!
In nearly all recent photos G's looking sideways. 
He's regressing back to that - gotta work on it again.
Still cute though!

Friday, October 15, 2010

Political Pundit

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Being an avid "Garage Sale-r", I taught my kids at a young age to watch for signs along the road.  They love the thrill of the hunt as much as I do - let's face it, most of what I'm looking for is for them!  G's no exception.  Between pointing out garbage trucks, mail trucks, fire trucks, holiday decorations, etc...G announces EVERY sign, every day, "Garage Sale!"  Car rides get deafeningly loud between my bad singing, laughing, lecturing or yelling, 3 kids being kids, traffic and G's loud broadcasts. 

G's learning that not every sign = Garage Sale.  We try to read signs to him to help him understand that each sign has different words and messages; to help him travel down that road to reading (apologies for the obvious pun).

This morning as we were driving through our sub, G recognized that the signs on front lawns were not "Garage Sale" signs, but something different.  G came up with his own new message - declaring,
"Poop Sale!"every few houses.  It took me a minute to notice that the signs he was labelling were political signs.

A really inconvenient name for a candidate
Yes, my silly G, you are more intuitive than we imagined.  Many agree that politicians are selling a load of poop!  Gotta love the innocent comments from children taken in a different context.   
<><><><>
<><><><>

I'll bet she wishes she had a crystal ball a few years back...










Remember...
Be positively CONFUSED!
Really?   ...who talked him into this?

Funny Road Signs (aka: funny stuff I found online at 2:00 am)









 Real Poop Signs (aka: funny stuff I found online at 2:10 am.)
I'm sure glad they included the disclaimer!
Yes, you too can own this... http://www.poopsign.com/
Wear it loud, wear it proud!
http://www.thebrowncow.com/manure-movers.cfm?category=248

 
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Wednesday, October 13, 2010

Checked Out or Tuned In?

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Where are you, whatcha thinking about, Little Guy?
If you have an autistic child, you probably notice that they often seem to drift off, absorbed in their own world, staring blankly.  We all do this, but frequent lapses can be a symptom of autism, a necessary shutting down from sensory overload.  I'm always taken aback because G is so high energy, fidgety, singing, chatting, pointing, yelling, whining.  When he's quiet and still, I panic a bit.  I always wonder where he goes on his little breaks, try to imagine what he's thinking.  Is he engaged in the "autistic savant thing": counting - stimming,  mulling over a complex mathematical equation, composing a symphony?  Likely not.  Or the more typical singing a catchy tune in his head, remembering a fun activity, taking in the scenery, simply daydreaming.  Or just...nothing??? 

Today I discovered I need to be mindful of what I do and say because he may be taking it all in - even when he appears "checked out".  In the car this morning G was not his usual lively chatty self, staring out the window instead.  I usually try to engage him in conversation, but today I took advantage of this quiet moment to call my husband and leave him a voicemail.  I explained a recent charge on a credit card, saying that we'd have to discuss some ideas I had for Christmas gifts this year.  I went on with a few other mundane necessities about shuttling kids tonight, asked if he needed anything from the store, etc. and hung up. 

A full minute later, G said, "Who were you talking to, Santa?" 
Hello Santa,
I'd like a full-size real garbage truck
and WM uniform please.

Does he always pay attention when I think he's in another world or did he just perk up when he heard "Christmas gift"?  His face held the blank stare the entire time. I habitually look back at him repeatedly while driving...it's a mom thing. 

I wonder if he'll expect Santa to pick him up later too?  :)

Tuesday, October 12, 2010

This Ain't No Dress Rehearsal

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One hundred years from now, it will not matter what my bank account was, how big my house was, or what kind of car I drove. But the world may be a little better, because I was important in the life of a child.  ~Forest Witcraft

Henri Toulous-Lautrec, Le Loge au Mascaron Dore
 Item # 12280217  http://www.art.com/

Life is a theater. Invite your audience carefully. Not everyone is emotionally or spiritually healthy & mature enough to have a front row seat in your life. There are people in your life that need to be loved from a distance. Pay attention to who lifts you up & who leans... on you. You cannot change the people around you...... but you can change the people you are around.  ~Unknown 
 


Dress Rehearsal, Carolyn Dawn Johnson

Lyrics
  

Is your life a Comedy or Tragedy?
Theater Masks   Item # 12351355
http://www.art.com/
  

Carnival at Marmorhaus by Josef Fenneker
Item # 10125050A  http://www.art.com/
When you stumble, make it part of the dance.


 

Sunday, October 3, 2010

Where's my Study Guide?

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Glo-Bowling birthday party sensory blues
Experience is a hard teacher
because she gives the test first,
the lesson afterwards.
 ~Vernon Sanders Law




Pop Quiz Popcorn

Each day in a parent's life is a test. 
Each day of an autism parent is a series of pop quizzes. 
Pop! Pop! Pop! 
Pop-Pop-Pop-Pop-Pop!
We spend energy anticipating pops
as if we're waiting and watching for popcorn kernels to burst. 
We delight pops of breakthroughs, euphoric moments. 
We expect pops of setbacks, anguished moments. 
We, along with our children
pop UP, DOWN, HIGH and LO, TO, and FRO; 
the sizzling skillet of  autism taking us all on a explosive ride.

Saturday, October 2, 2010

Words Can't Describe...

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Likely as not, the child you can do the least with will do the most to make you proud. ~Mignon McLaughlin

Someone asked recently for words to describe what it's like to be an autism parent.  Here are mine, for today...
Mystifying, quirky, fun, irritating, lonely, painful, silly, loud, surprising, terrifying, vigorous, delightful, whirlwind, loving, proud, breathtaking, humbling, exhausting, consuming, frustrating, humiliating, brutal, extraordinary, beautiful, unparalleled, sublime.

In other words, a contradiction in terms each moment of every day! 

I've been able to handle my two neurotypical children at any age together easier than any stage of G's life since he began walking at 14 months and regressing.  Even when at 1 and 3, they'd each zoom off in opposite directions at the grocery store.  Even when my infant daughter had colic for 5 long, horrifying months.  Even when my older son got frighteningly high fevers for 2 years before I finally demanded - instead of asking - that his tonsils come out.  Even when they simultaneously caught the messy flu, screamed, cried, fought over a toy, yanked on my pant-leg, needed a great big hug because they had a rotten day.  I've never had discipline or long-term behavior issues with either of them...N and M aren't perfect, they're typical kids.  Then along comes my wild child G.  Nothing prepared me for this amazing experience.  From my perspective, parenting autism equals performing caregiving at ten times neurotypical parenting.  I surely can't imagine how parents cope who have physically challenged, non-verbal or multi-challenged children....and many families have more than one handicapped child.  I'm awestruck at the thought!  Blessings, peace, strength and good karma to all of you. 

Famous Words About Parenthood

Having a family is like having a bowling alley installed in your brain. ~Martin Mull

Making the decision to have a child is momentous.  It is to decide forever to have your heart go walking around outside your body.  ~Elizabeth Stone

When my kids become wild and unruly, I use a nice, safe playpen. When they're finished, I climb out. ~Erma Bombeck

In spite of the six thousand manuals on child raising in the bookstores, child raising is still a dark continent and no one really knows anything. You just need a lot of love and luck - and, of course, courage. ~Bill Cosby, Fatherhood, 1986

What are your words?

Thursday, September 30, 2010

Bravo to Martial Arts Heroes

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Bravo to this inspiring man!  http://www.wxyz.com/dpp/news/region/oakland_county/local-martial-artist-willie-adams-is-helping-people-with-special-needs-in-southfield
Master Willie Adams teaches Detroit-area special needs students 2-3 times per week, FREE.  I can't believe this man is 64, he looks wonderful.  Good health and good deeds makes it so, I guess.  :}


G loves getting his temple stamp for a good job

Progress!
I have exciting news about G this week: he got his first belt tip!  A tip marks progress, and students need 4-5 tips to test for the next level belt.  He acheived his black tip which is for blocking set; requiring routine, form, attention and focus.!!!!  G's been going 4-5 times per week since July, and he's doing great at class participation and taking verbal instruction.

He has a wonderful bond with our local Tae Kwon Do Master, who's extremely patient with G and gets a kick out of him (or several!)...lol.  G still has trouble with some of the warm-up exercises that require heavy-duty motor planning: spider walk, crab walk, jumping jacks, push-ups.  I love to watch him do push-ups - he gets in proper form, then just bobs his head up and down.  I'll have to get a video of that!  :}

Related post:
http://allinadaysquirks.blogspot.com/2010/07/jumping-gs.html

Fun Finds: Autism Awareness Merchandise


I found a great source for autism awareness products, REALLY reasonable prices, unique offerings. http://www.iloveachildwithautism.com/
Some of the cool stuff:

Temporary Tattoo, see below for details

6 Temporary Tattoos, may last 7days: $10

They have some creative shirt phrases that I haven't seen before.  While the graphics and typography are uninspiring, the messages are fun and positive. 
  • T-shirts: Youth $12 Adult $14
  • Sweatshirts: Youth $20  Adult $22
Check out the monthly specials: today some long sleeve t-shirts and sweatshirts are offered for $5-$6!










I haven't ordered any products yet, so I can't report about quality or service. I'll update when I do...