![]() |
Christmas in July! Summer 2010, an impromptu dress up/jam session in the garden next to my flowering towering hydangea. I'm so glad N and M are in choir - instruments are NOT their strong points! ;) |
Optimist: someone who figures that taking a step backward after taking a step forward is not a disaster, it's a cha-cha. ~Robert Brault
Wednesday, December 7, 2011
12 Quirky Days of Christmas Autism Style
Monday, December 5, 2011
I Say Wex-ler, You Say Wac-slr
http://www.scientificamerican.com/article.cfm?id=the-hidden-potential-of-autistic-kids
We say young children take risks of daring physical feats because they lack the fear that adults have. They leap before they look. I believe it's this way with many autistics. They take leaps of thought we may not take because of preconceived ideas, logic, social mores, religious beliefs, current events, etc. Instead they blurt out their answers, see information as black and white; because they do not have to overcome fear or mental obstacles, social phobia.
Spectrum brains may "see", or experience the world around them differently. As Temple Grandin says, "Different, not better." But maybe it IS better. Wouldn't it be great to think so?
Does your child or loved one on the spectrum have a splinter skill? Do you nurture it, tap into their strength? Do you search for practical applications for those skills so that they may become productive adults? How about your schools - have they discovered any hidden treasures?
Back to the Scientific American article.
I LOVE this comment:
Comment #12:
Could it be that autism is merely the genetic growth and development of the human brain along its way to its next iteration?
What a fun, interesting concept to mull around. Perhaps they are to be revered by all, not just their caregivers. What do you think?
Wednesday, November 30, 2011
Samples for Santa and Son
Great big thanks to our newish (Sept.) Pediatrician for G. We discussed several options during G's med check. At the last minute he switched to a different med and thought it would be a good fit. He brought out samples to try, enough for over a month. I told him Santa appreciates that. Holy moley, this kid is expensive. How do families with multiple kids w/dx's afford it?
Again, this is a combo med. His new Adhd med works great for attention, but turns him into a tyrant. He throws things, crosses his arms and stomps around very very hard. He screeches. He runs around and is hyper until 2 am. He has potty accidents. He has dark circles under his eyes from lack of sleep.
The last combo med meant to chill him out made him even worse. I stopped it after 2 weeks.
Let's hope this new med stabilizes him. I asked him on the way to the Dr. How he thought his new med was...did he like it?
No.
Why?
It makes me say bad things and throw stuff.
What a breakthrough! He has become increasingly self aware in the last 2 weeks. Is that one of the "pros" in the comparison checklist? Absolutely.
Other "pros":
He has wonderful attention.
He is communicating better.
He seems to be more social.
He has an appetite. He'd lost 18 lbs. Since
Feb. Today's weigh-in he's gained 3 lbs. He was actually getting bony.
He's into music and singing, playing mytunes constantly. Yippee! This also means he requests music in the car. Before he often threw a fit if I turned music on (sensory) I love to sing in the car!
He's increased his creative expression. He's actually drawing, crafting, creating in amazing ways.
His tics are gone except the nail clipping/picking OCD, and sticking his fingers in his nose. UGG! Could there be a more disgusting obsession? But it's still better than his previous magnitude of tics.
Meds. It's all a delicate balance. I have to consider that he could be growing naturally more self aware, social, etc. But when changes appear simultaneously with new meds, I tend to believe it's the med.
I learned some shocking news yesterday. I was skimming Facebook and saw a photo of G's prior ped. He is being charged with peeping in a window of a 12 year old girl on 4 occasions. I'm so hoping this isn't true. I just can't imagine it. He was so incredibly patient with G, and communicated well with him and me (with my 2000 questions). He's the Dr who gave us the miracle of pharmacotherapy. I'd tried a couple others, called many. Most wouldn't give meds. He did on our first appointment. He tweaked the meds, tried a few alternatives. Ultimately though, he said he wasn't comfortable dispensing meds with multiple dx's present. He advised a pyschiatrist to get it worked out, they knew these meds very well. It ended poorly when after about 50 calls (no lie), I called back to let them know that insurance mandated him seeing a psychologist, going through the lengthy, costly process of evalution. Only then would he be referred to a psychiatrist (probably with a multi-month waiting list). Then the consults with them before dispensing meds. Ugh!!! I had neither the patience or time left for that. I have a at least 30 dx's and detailed reports that I could supply any Dr. in order to document his precise issues. Plus insurance mandated that he sees psychologist regularly for counseling therapy. REALLY??? The NP relayed this to the doc and he said to keep trying, he was not going to give more meds. I told the NP that it saddened me to have to now find a new pediatrician. He was a brick wall, not budging. So different than his usual kindness. That scares me a bit as to why ...are the new class of drugs more dangerous? Why the change of heart/compassion? Maybe it's protocol.
I had to laugh and accept it, multi-task while I waited on hold endless hours waiting to speak to a human. What would G's psych sessions look like? Clearly NOT the typical lie down on the couch and bare his soul, discuss his issues. He's 6!!! He thinks the world revolves around him. Therefore, he has no problems! Life couldn"t be better!
I finally was referred to another doc from another mom who I struck up a conversation with when somehow G's Adhd came up. I've been very pleased with the new ped so far. He's gentle, kind and specializes in ADHD, ADD, ASD. He picked up where we were, asking many questions and treating us both with ease, humor and respect, as our previous doc did. Best of all, his office is closer to home.
Onward to new horizons. I'd be stuck without a ped if we hadn't changed G's last Dr. He took a leave of absence pending this accusation and legal action. I'm afraid that true or not, his career will be affected poorly.
Meanwhile, we'll be monitoring G. I'm so Prayng for SLEEP!
Thursday, November 24, 2011
Take Time to Baste the Turkey
Wednesday, November 23, 2011
PDQ #26
Thanksgiving Eve: while I cleaned up the kitchen post veggie cutting marathon, I finally got G to go upstairs and get ready for shower time. I heard him singing, then every 30 seconds or so he'd call out, "Are you coming yet?"
He excitedly met me at the stairs.
In a tour director voice, "Just follow the trail to find your way to the shower."
Cute, he'd created a trail of cereal, up the stairs, down hallway and through our bedroom and bath. But the kicker was then he got down on all 4's and ate them, sliding along his trail. Ewwwww! I don't care if we'd just shampooed the carpet today, that's disgusting! And no, it's been 6 months...and a week since I vacuumed. Ewwww x gazillion!
But like many things in the course of a day with G, I gave it up. He was proud, he was acting out a creative scene, and the likelihood of him getting ill from our carpet was small. Am I being a bit lazy? Oh absolutely!!! After a day/night completely alone with him, no breaks, and finally getting him to agree to take a shower, I'm weakened. Let him "work" me in my exhausted mental/physical state, it won't be the last time.
Never weak, but I have limits of strength. :)
Like the saying goes:
Never mistake my kindness for weakness.
Update: As I sit here blogging, G's gotten out of the shower and began blowdrying his hair in his haphazard fashion(usually for about 30 seconds). Next thing I saw: G blowdrying his "weiner". It was only about 3 seconds, no permanent or even temporary pain/damage. OMG, he's ridiculous. I put a stop to that! Sorry G, you can't act out those kind of creative actions.
PDQ #25
Love love love it!
...and what says Thanksgiving better than flowers and a star? teehee
Tuesday, November 22, 2011
PDQ# 24
G and I picked up M at middle school andx took off for OT. M's career ambition is to be an OT. A perfect fit for her athletic skill, extreme patience, sunny disposition and love of children. She loves to watch G do his OT. I try to explain to her what they're working on, based on my book knowledge and the excellent communication/feedback I get from his OT. G's benefitted double for a month or so because another student has been observing and helping. So inspiring to see these young professionals put so much planning into his sessions. They light up when he reacts and patiently guide him when he gets stuck. M takes it all in. She walks back and forth in the observation room, straining to get a perfect view, follows along with his movements, squats down to watch closely, and whispers excitedly every 2 minutes , "Did you see that ____?"
G made a list of our schedule tonight before we left home. No pictures, which I found surprising since he's been making visual schedules often recently.
M
OT
Shopping
Mcdonalds
Home N Dad
We ate at Steak and Shake (marginally healthier and the shake idea won him over, to M's delight. Running to the car in the pouring rain, G jumping, splashing in every puddle in the lot, "This is the best 'Girl's Day Out' ever!" Oh, he knows he's a boy alright, he just loves his girls, Mom and M. Sweet.
2 stores later as we entered Marshall's, "I know why we're still shopping. I didn't cross it off the list yet!" Gotta love his logic.
I was looking for a household item, but G ran to the shoes. Marshall's totally rocks our shoe habit. I pretty much look and drool, with a faraway glaze over my eyes. G and M love to try on shoes. Both heels and boots. Another year or so and I'll have to stop G, but it's harmless and cracks us up. He loves patent leather and sparkles. M likes funky, my kinda gal, but with heels. Seriously though, I get great deals for the kids' shoes which keeps us going every few months as one or more grows. Fun!
G crossed it off his list at last. Onward home to follow the bathtime story I scratched out in a fit of panic last week as a last ditch effort when he was uncooperative. I'm going to need to copy and laminate it. Though clearly not indicative of my expensive Art Degree, no changing or re-do's allowed. He'd have a cow. But of course he tells me each night that it's supposed to be "Dry off", not "towel" like I say. And I notice that he's put a few extra xo's in before the shower. Alway's room for that!
G loves that new little secret of x and o...each night he comes and kisses and says "O!" Then a giant, "X!"
xoxo...
PDQ #23
G is really loving picture schedules now. At long last!
He loves to draw them at OT, and I'm thrilled to see his natural drawing ability. Today he 's allowed to write on the 2-way glass. Such a strange experience to have him looking right at us, but not seeing.
Let's hope he doesn't take a marker to our windows or mirrors at home! Not that I care about the clean up, but if he makes it a habit, he may carry it to other environments where it will not be welcome....Grandma's, mall windows, school. Lol
Sunday, November 20, 2011
Making Sense-ory
Thursday, November 17, 2011
Hip Hip Hooray!
Besides laughs and hugs from my kiddos. :)
Tuesday, November 15, 2011
Chin Up, Volume Down
One common trait most parents strive for in their children:
CONFIDENCE
Most parents fret over this. We plan elaborate schemes for success and choreograph seamless schedules to keep our precious kids busy building self awareness. We spend hours shuttling kids around a 300 mile radius of our mostly empty home. We study hours with them for tests, help with school projects. We enroll them in summer programs, athletic clinics, clubs, tutors, school programs, tournaments, competitions, and more in the hopes of finding their gift, their source for positive self image.
Parents of autistic kids try the same strategies - in addition to their whirlwind schedule of professional therapies.
I don't have to worry much about pulling out G's sense of pride.
"I am SO TOTALLY AWESOME at this game. I am SO WINNING I'm the BEST IN THE WORLD!!!" Of course yelled in a LOUD, unmodulated flat speech pattern common to ASD. The style of boasting guaranteed to upset classmates and teammates; and quite often teachers and other parents. But our ASD kids don't have a clue. They're totally self-contained, self-centered.
ON the flip side, I must be prepared for,
" I CAN'T do this! I'll NEVER EVER EVER get it. It's too hard. It's useless. I NEVER want to do this again! EVER " Of course screeched in a fingernails on chalkboard, hair-raising pitch that makes whining sound pleasant
by contrast.
The big difference for most autistic kids is their "All or Nothing/No Gray Area" singular thinking. They can't see forward to second chances: the next game, the follow-up test, the perseverance of practicing skills over and over to reach a goal. They don't always understand teamwork. They don't get Sportsmanship.
"I am so great! I'm going to win! Hahaha."
Got an app for that? One that teaches/models humility, sportsmanship, encouragement? Rewards for teamwork? I'd LOVE to consult and beta test it...and I'd bet G's siblings would be grateful. :)
I'm absolutely serious. Apple or Android.
Bring it!
Monday, November 14, 2011
G's 6!
![]() |
G has serious eye contact with his birthday cake, teehee |
![]() |
Big bro and sis came to visit G at the hospital My 3 Miracle Babies |
Wednesday, November 9, 2011
Birth of a Miracle
"Mom, you forgot to Give Meeeeeeeee my MEDS!"
Saturday, November 5, 2011
PDQ #21
I'm not certain if it's the new meds, but he has had a few potty accidents. Shocking because he hasn't for a long long time. Years. He's avoiding potty needs at school, which is a worry for me. He runs home from the busstop and flies into the bathroom each day. He began to have accidents and peed his bed 3 times in 1 week. He even pooped his pants twice! He has become constipated, never an issue for him. I'm pretty certain it's from holding it in each day.
Along with this, G's also getting night frights. Some may be caused from the Halloween factor, but he's not really exposed to scary things. Many nights he trudges down to sleep on a couch or gets in bed with us. Tonight was such a night. I asked him to let me spread a blanket under him in case he had an accident.
Ever so seriously, G replied, "Well, but I only have accidents on garbage truck day."
As my kids would shout, "Random!!!"
Saturday, October 8, 2011
G’s Career Plan
Random Car Chat
G: Sigh….I wish I had a wishing well so I could be older.
Me: Why!????!
G: So I could have a job.
Me: Wow! What kind of job?
G: I want to work at a lib-a-rar-y.
Me: What would you do there?
G: Make books and stuff like that.
Me: Like write books or put them together?
G: Pause… Both. Write books AND make them.
Thought balloon over my grinning face: Yippee!
Our trips to the library all these years are working! And I thought all he was interested in there was the fun special programs, puzzles, puppets, and computer games. I often have to distract him over to the book section or drag him away from the computers to get books. He loves books, but computers just for kids are alluring. And hey, you get to wear the cool headphones.
G ran ahead while I got N and M situated in a teen study skills class last night. He always zooms to the computers, looks around to see what others are playing, then checks out the interesting looking sites himself. Hmmm…nope, not there. I felt that old instinctual panic zing through my body, quickening my step. I found him digging intently through shelves of picture books. He brought each carefully selected gem to a growing pile on the table. When finished, he excitedly showed me each book. Then he strode off purposefully, picked out a puzzle and sat down to play. He picked out dvds when he noticed me looking.
He didn’t go to the computers to zone out for a full 35 minutes. AMAZING.
Self-check out + G: So. On. It. Nifty and fun, but I miss the casual chatting with desk clerks. I’m afraid when he grows up, librarians may be a distant memory. A casualty of electronic media, instant/gotta have it now/right here/day or night/NOW. Disposable.
Noooooooo!
There’s a good one for your wishing well, G.
Tuesday, October 4, 2011
Magical Miracle Round
Ahhh, finally a sunny fall day with a crisp breeze blowing leaves under our crunching footsteps. On the walk home from the bus stop, I decided to put off kids finishing homework until after our evening activities and instead sneak up to the park for some sunny fun.
G spun around and around on the Miracle Round (merry go round), zipping across the park before we even reached to unlatch our seatbelts. He soon grew bored of the slow parental pushing skills, and hopped down to push the little girl, working hard and grunting. The parents saw their opportunity and backed away slowly to sit and cuddle around a cup of java on a nearby bench. I followed suit, minus the java and cuddling partner. My older kids were off doing their own older version of goal-oriented play, mostly chasing and screaming. I was ready for G’s Magical Miracle Round Show.
G “allowed” his little friend to have a turn to push. But after 2 minutes, he harrumphed and slid off, stating matter-of-factly,
“I can push better than you.”
Those classic autism (anti)social skills in action. Aghast, I covered my face. I peeked through fingers when I heard no response.
The patient girl jumped on and waited for him to push. 2-way tolerance! Yippee! G happily pushed for several minutes, jumping on now and then to enjoy the ride himself. I began to watch the leaves, settling back into the cold metal bench.
G jumped off at last and said, “C’mon!” to his little friend. She followed him around on a few playground activities before they approached the standing Teeter-Totter of Horror. Yes, this equipment is many times more dangerous than an old-fashioned teeter-totter, which was deemed too hazardous in most playgrounds many years ago. It’s tons of fun, until someone gets hurt. You can almost feel the collective cringe, hear the small gasp of breath, jaw clenching from caregivers in the park when children climb up to ride this fun monster (I mean toy). I walked over to supervise, worried that G would jump off and send her careening down/off, interrupting her adorably huddled parents. No worries. The pair teetered calmly.
The girl said, “We have one of these, but not really one of these at my playground where I come from.”
I asked, “Oh you don’t live here?”
“Nope, I live all the way in (her town).”
I laughed, thinking how a town 10 miles away can seem a lifetime of waiting in the car for a child. In Michigan, it could take an hour, winding around lakes, parks and farms. She then recited her address to us, which made me shudder. This openness was both good and bad, in the realm of Stranger Danger.
G gleefully, “Mom, this is medicine!”
??? I quizzically wondered where this random thought came from. My brain went into hyper-G-search mode, whisking about for G translation like a scientist figuring out a formula for a teeter totter launch, considering all the variables, testing theories. In the field, a child waiting, no calculator.
Enjoyment = Sunshine?
Enjoyment = Park Visit?
Enjoyment = Teeter Totter?
Enjoyment = His New Friend?
Or was it all of it? He can be amazingly profound. Other times, completely nonsensical. My job was deciphering which was which, when was when, who was who. What? Where’ my magic wand?
Helpless, I finally asked, “You’re having fun?”
“Yes!” he spat out, exasperated. “She’s the same age as me. This is medicine. Med-i-cine!” If he knew how to spell it, he’d be spitting that out too, I’m certain.
The sweet girl looked up just as my brow crinkled and corrected, “Madison.”
Madison was medicine. She happily played with my funny G, ignoring his differences, patiently asserting herself when necessary.
Once again, I learn from G to simplify. I often try so hard to figure out his meaning, his motivation, his emotion, his needs…that I forget to sit back and let it work itself out. My panic comes from years of anticipating his movement as a whirling dervish, playing offense to his meddling curiosity and scenes of a search team spreading out to find our lightning speed escapist. With G calmer, less impulsive, I can chill a bit. I can attempt to match, to compare, to meld his reality to mine, but why frustrate myself?
Maybe it’s the artist, the poet, the wordsmith in me trying to stretch his words to fit a deeper meaning, a stronger insight into his inner workings. Our autistic kids aren’t cookie cutter, in fact I believe most NT kids aren’t either. We just try to squeeze them in where they fit, categorize them neatly – or mold them to an ideal we’ve created. Admit it, we do it even with ourselves. I can’t seem to find my fit, I’m always changing, evolving. Life is too transient, disposable – to settle in and fit comfortably (or I’m AD/HD myself, teehee).
My strong constant is my ever-present bond with my kids; our common denominator, love.
I always seem to simplify to this equation:
Magic = Love
Wednesday, September 21, 2011
Brought to You By the Letter B
Multitasking fun…G and I dragged a bunch of board games to the deck so that we could enjoy the gorgeous fall day while N and M did their homework. I was close enough to help with homework, but quiet enough to sit at the same table. In between turns, I framed up N and M’s school pix. G oft-times lingers to ponder random subjects, count his letters, read the words on the board, etc. Glancing at his letters, I threw in a suggestion (or 22) as well.
Finally, “G, WHAT are you looking for?” grumbled impatient sis who was supposed to be doing math.
“B!”
“B-B-B-B-B-B-B-B-B-B-B-B-B-B-B-B-B-B-B-B-B-!”
Just then, the oven timer beeped, creating sweet harmony with G’s semi-automatic clip of B’s. I pranced inside to check the lavish frozen (shhhhh!) mac n’ cheese bubbling happily in the oven. Perfect, I added a layer of cheddar jack to make a fine crust and reset the timer. I threw on some veggies and returned outside. N had retreated inside to escape G’s “B!”, which he continued at frenzied decibels.
I calmly got down and maneuvered my body, my face to gaze into his, “What word are you trying to spell – I’ll help.”
“B!”, pulling away.
“What word do you need B for?”, re-connecting.
“Bra! B-R-A!”
“BRA-BRA-BRA-BRA-BRA-BRA-BRA-BRA-BRA-BRA!”
This sent us all into hysterics, which made G grumpy. But it sent him into action. He stole a B from another word on the board, “Bank” and made his word.
“Bra!”
I don’t even bother to check if the neighbors hear anymore. G makes himself known.
Still giggling, I sputtered,
“How do you know how to spell bra!?!?”
His standard reply,
“I dunno, I just do.”
…and he walked away, bored now with his completed task.
The mystery continues.
I can’t wait to see what today’s vocabulary word is.
Tuesday, September 20, 2011
I Say Dyspraxia, You Say Dysfunctional.
Send good karma, prayers and positive vibes...
Read the Autism Insurance Bills being voted on today in Michigan. Type in: 414-415 bill search box to read content.
All good. I decided to see if other votes are on the table for our humble cause.
I typed in key word "autism".
Bill 050: Insurance; health; coverage for autism spectrum disorder, mental health, and substance abuse treatment; provide that coverage cannot be more restrictive than coverage for medical treatment. Amends 1956 PA 218 (MCL 500.100 - 500.8302) by adding sec. 3406s.
Most adults have been touched by substance abuse at least once. We’ve all seen it played out in movies, on uncles, neighbors, friends. It’s a grotesque, heartbreaking experience. I’ve seen the ravages of substance abuse on family. I’ve felt the dysfunctional environment of growing up in the shadow of addiction. I know MANY who have had/should have substance abuse treatment and wholly support that effort…
…but REALLY??????
Who wrote this bill –
are they on crack?
Must we be in the same bill, category?
Autism = Addiction?
No comparison.
Our kids don't choose autism.
Our kids can’t just say no!
Our kids can’t check in and dry out.
There’s no patch for autism.
Our kids can't go cold turkey.
I’m flaming and irked, and not from a hot flash.
Meanwhile, back to the song…
I say Apraxia, you say Amphetamine.
Let’s call the whole thing off.
??????
NO, no, no. Whatever it takes.
Pray for the bills to pass.
Then pass the pipe.
Thursday, September 15, 2011
Rose-Colored (Sun)Glasses
Mama Perks
Today brought some sibling squabble irritations that exasperated me. I dug deep to maintain cool and move on following a 5 minute “discussion” with my 12 year old, N. Then I took some sage advice to heart. I can’t find the actual quote it comes from, but the gist is…
When a child misbehaves, it’s not always anger or punishment he needs; but he needs a hug, kindness, attention.
I applied this to N today and it made me feel much much better than the lecture did…without a smidgeon of guilt. I took him on an errand while the other 2 were at an activity, instead of running off myself. That brief trip with him to the drizzly Farmer’s Market renewed his attitude and brightened his mood. We played a game on my phone together in the parking lot for 10 minutes, laughing and whooping over our scores. We ran inside through the rain, shaking off drips from the downpour. Our spirits refreshed - all smiles and sunshine. Win-win. Psyche!
Hugs are the universal medicine. ~Unknown
The 2 clashing sibs gave me sweet little gems to counteract their frustrating behavior.
We went to G’s Kindergarten open House last night and he talked all morning about how much fun it was. At the bus stop, G grabbed my hand, peeked up for a split second and invited, “Come on, why don’t you come with me to school today?” In a sweet tone, not whiny or needy or scared. Spontaneous affection, eye contact, and a beautiful sentiment that tells me he wants ME to be with him. Triple bonus! Totally out of the blue. A tear spiller moment.
Later, at the dinner table my husband told me my new glasses look nice (another rarity – the day I got them he didn’t notice and the change is fairly drastic). I then exclaimed that I was thrilled to finally have Transitions (the type that turns into sunglasses). I continued, “Can you believe I’m 47 (shhhh 39!) and this is the first time I treated myself to transition lenses? I love them!”
Tween N, who half the time pretends he isn’t listening and/or interested asked, “Really?!? You mean you got them for me and M for our glasses, but didn’t get them for you? AND we have them on our sports glasses too!” Wow, epiphany! He realized that my kiddos really do come first. How cool is that?
I raised my eyebrows, “Oh yeah, I guess so.” I guess it was a no-brainer for them – playing outside, outdoor sports, visibility, protection, etc. But I didn’t apply it to myself until now. I’m outside just as much, glued to G’s side like a body guard (essentially my title), at their games, events, playing in the back yard, swimming. I suppose I can count on slowing down the crinkle face progress as a side benefit to being able to enjoy sunny days and less eye strain. See, I’m still justifying them for myself, aren’t I? teehee
Thanks boys, I’m so going to focus on these charming sentiments. I‘ll pull the memories out and hug them to my chest, my heart when I need a lift, some love or when I’m upset by misbehavin’ kiddos. Tonight they’re at the top of the day’s list of wonderment and love.
Words to live by now, before they grow, while I still can…
If I had my child to raise over again:
I'd build self-esteem first and the house later
I'd finger paint more and point the finger less
I would do less correcting and more connecting
I'd take my eyes off my watch and watch with my eyes
I would care to know less and know to care more
I'd take more hikes and fly more kites
I'd stop playing serious and seriously play
I would run through more fields and gaze at more stars
I'd do more hugging and less tugging
I'd see the oak tree in the acorn more often
I would be firm less often and affirm much more
I'd model less about the love of power
And more about the power of love.
Diane Loomans
Tuesday, September 13, 2011
Spread the Word to End The Word ("R" Word)
You have to see this inspiring message. What a powerful tribute from a loving sister.
From Dictionary.com
re·tard [ree-tahrd] noun
1. a slowing down, diminution, or hindrance, as in a machine. 2. Slang: Disparaging a. a mentally retarded person b. a person who is stupid, obtuse, or ineffective in some way: a hopeless social retard.
Ashamed I’m sad to say that I grew up when saying that word was just a common phrase, like gross, bogue, yuck, silly, funny, weird, goofy, etc. We used it not so much as name calling, but more as a descriptive word for something we didn’t like or couldn’t understand. I admit to slipping occasionally when I'm with a childhood friend - the old lingo gushes out.
Now I'm hyper-aware, I catch myself:
“that’s re-....uh...ridiculous."
It's a word most people say without realizing. They surely cannot understand how they hurt people with special needs, their friends and families.
Retard Reality Everyone should realize that disability does not discriminate....rich, poor, ugly, beautiful, fat, skinny, kind, mean, funny, sad, brown, white, old, young. It can appear from nowhere to touch your life, consume your family. It shows no mercy, and - unlike lightning - often strikes twice, thrice and more.
Disability barges in with fists flying to assault families with tears, heartache, despair, anxiety, confusion, struggles, exhaustion, isolation.
But disability also brings along a surprise treasure chest filled with smiles, joy, wonder, delight, pride, laughter, simplicity, beauty, growth, inspiration, knowledge, depth, hope and loads of love.
From Dictionary.com
re·tard /rɪˈtÉ‘rd,ˈri
tɑrd [ri-tahrd]
verb (used with object) 1. to make slow; delay the development or progress of (an action, process, etc.); hinder or impede.
verb (used without object) 2. to be delayed
Retard the R-word With a little faith and cultivation, we can help teach others to learn the correct meaning of retard (noun) and help to retard (verb) its misuse.
Let's turn that frown upside down.
Please spread the word to end the word.
Make your pledge now to STOP!
Invite your friends.
https://www.facebook.com/EndtheWord?ref=ts&sk=wall
Catch yourself before you think/say the R-word. Use my trick - instead say, “ridiculous”. It fits without the hurt.
Pass it along.