Optimist: someone who figures that taking a step backward after taking a step forward is not a disaster, it's a cha-cha. ~Robert Brault
Wednesday, October 23, 2013
Sensory Green Zone
Friday, October 18, 2013
Bring it!
Mama's Autism-Ready...
Thursday, October 17, 2013
Meet Mrs. Google Face
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http://www.amazon.com/Roger-Hargreaves/e/B001HP0AXO/ref=sr_ntt_srch_lnk_1?qid=1382025031&sr=8-1 |
Hello. My name is Perky and I'm addicted to Google. I have no intention of quitting, but I thought I should announce it. Call it my public service action towards Google Addiction Awareness.
Autism: 45,300,000 results
ADHD: 36,700,000 results
OCD: 19,800,000 results
Asperger's: 4,360,000 results
Sensory Processing: 8,980,000 results
Anxiety: 137,000,000 results
Autism Symptoms: 22,000,000 results
Autism Treatment: 55,300,000 results
Autism Diet: 35,500,000 results
IEP: 11,100,000 results
So many results, so little results.
Support groups are wonderful. Even if we don't get a chance to voice our concerns, we can offer hope and tips to other struggling parents. It gives us a lift to be able to guide or comfort another in our Lonely Hearts Club. But then at times our own issues pale by comparison. How can I bring up my frustration of my son's nose picking problem when the last bruised mom sobbed about her child's violent outbursts? This can work both ways: we may feel relieved that we're not currently in that horrific phase, yet still frustrated that we didn't share our own troubles.
I seek, you seek.
We all seek for nice speak.
Then we return to our dear research. There's no expert on your child...except you.
Dear Google.
I love you a google and a peck. Indefinitely. Not gonna stop. Gotta get my fix. Must get my Google on.
Love Always,
Mrs. Google Face
((((((((virtual hugs))))))))
Tuesday, October 15, 2013
It Don't Mean a Thing if You Ain't Got that Swing
A dear friend gathered a few moms to set up a "G playday program" with their sons from his classroom. Each day, a different boy was assigned to ask G to join in their fun and games at recess. I'd ask G daily who he played with. He often couldn't remember their names or got them wrong, though he'd known most of them for 2 years. He'd just as often say he'd played for awhile and then gone on the swings by himself.
"Sometimes I just want to swing the whole recess, Mom!" he explained.
"Don't you want to play along with the others and run and laugh and play games?"
"Some of the other kids get mad at me because I play their games wrong."
"Ask your "buddies" to teach you the rules. Or find another group that's doing something you enjoy and play with them."
"Really Mom, I don't care about playing with anybody. Swinging makes me feel all better."
One day I asked him who he played with and what they'd done at recess. He told me Boy A, when I knew that he'd played with Boy A the day prior and played with Boy B this day.
"Really G, I know you played with Boy B today, I talked to his mom."
"Nope. It was Boy A. It was wearing the same coat as yesterday."

Was.
Wearing.
The.
Same.
Coat.
IT! .....Coat!
This truly brought home the realization of how deeply I overestimated his social awareness. No facial recognition, because G never looked at the boy's face. No personification, because IT was merely a plaything, not a person. I cried for days. Then I moved on. As we must.
Hope. I'm not holding my breath, but this year G may be getting more socially active. I gave up pressuring him and badgering him about being social after the grand lesson from last year about It Boy. But now he offers up his recess adventures more freely. He tells me that he plays with this group, or this boy. Always with a variation of, "My bestest friend EVER in the whole wide world", which changes daily. He still may not know exactly who he's playing with at times, though I've been impressed that he's naming different boys in his class and from last year too. But what matters most is that he's getting joy from social interaction. I dream of him having a best friend someday, but maybe I'm selfishly projecting my wishes on him. He may not need a best friend. For now, at least he's moving towards social. Plus, he's supremely happy. Who can argue with that?


Monday, October 14, 2013
De script or...not
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Squinty night owl in Blonde pants eating breakfast on the way to school |
Friday, October 11, 2013
Star Struck

Get Your Quirks On!
Families and caregivers touched by special needs/autism need a perky party! Find your happy place. Share your priceless stories, photos, videos, drawings, parody, someecards, sound bytes, creations... of quirky FUN!
Facebook special needs pages and groups are full of info, news, questions, trauma, heartbreak, fear, help, sharing, caring and love. I love all of it. I couldn't cope without my precious Facebook support in my isolated world.
But, what's missing? Laughs! A sweet spot to share our playful, adorable, gleeful, zany treasured stories.
Or post it to Facebook page:
https://www.facebook.com/pages/All-in-a-Days-Quirks/111116812270654
Necessary Warnings:
Thursday, October 10, 2013
Wednesday, October 9, 2013
Quotable Quirks #1
We've all heard the famous quote:
Life's not about avoiding the storm,
but learning to dance in the rain
~Unknown
I've adapted it to reflect autism parenting:
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Sunday, October 28, 2012
A Look Behind the Mask
G's issues, fears and needs and this post opened an even larger perspective to me. Considering my sizable exposure to special needs in the past several years, I have become much more tuned in to all children's behaviors, typical or other. But, on a daily basis, it's sometimes all I can do to live up to my own duties and concerns as an Autism parent, tween and teen as well.
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How's that for Eye Contact? |
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His "Scary" look |
BUT, not all kids who look brave are. Our special needs kids react very differently to this strange holiday. His/her parents may have worked for weeks to prep them, condition their child for this frightening night with its odd customs and costumes. Each year, these parents work on the same issues as they once did with their babies, toddlers. Our kids stay stuck in those early stages or move slower into it, delayed. Therapists instruct parents: In all things - repetition, practice, patience, DE-SENSITIZE.
But...Halloween is all about senses, more than any other holiday, its' theme is designed to attack the senses, create fear. Many of our children are seized by fear and anxiety as part of their core symptoms. Many cling to safety, routine, familiar, CONTROL. Because this holiday is celebrated at night, that familiarity is gone, the safety difficult to discern. Their fear goes much deeper than typical Halloween fear. Their fear may quickly escalate to fight or flight; cause anxiety attack or full-on meltdowns, screaming, running, grasping for the familiar, needing control. For this reason, even parents of older children on the spectrum must accompany their kids and be on high alert to their body language, eye movements, tone of voice (if verbal), etc.. Our kids often don't recognize their limitations or know when to stop. We know our kids best: how to persuade them, cajole them to safety before they reach high alert. Not only would that situation be uncomfortable or embarrassing for the siblings, friends and (possibly) child - it could easily escalate to a dangerous level. My G runs blindly when he reaches a high level of anxiety or excitement. He may run into traffic, hide or run into someone or something. The possibility for injury to him or others is high with all these factors - dark, many cords and odd placements for decorations, many walkers, wagons, cars, portable campfires, difficult visibility. It's certainly a recipe for disaster without carefully planned safety checkpoints in place.
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Captain Candy in Control |
Your house may be the first or only house a special needs child can find the courage to come to. We're blessed with great neighbors that we know. We skip those we don't. Because G gets spooked, he only goes to a few homes and then returns home to hand out candy, where HE is in control. Last year he made it a few short blocks, then ran as fast as he could home almost losing my speedy daughter, my husband minutes behind, out of breath and flustered. Thankfully we had walkie-talkies and a super fast sister. I shivered in fright to think what might have happened if my daughter had gone ahead with her friends earlier instead of spending the first few blocks helping G. Still, we were thrilled that he lasted as long as he did. As soon as he arrived home he drew a big labored breath, let it out in a rush as let me hug him briefly, asking about handing out candy all the while. He put down his orange bucket, threw off his costume, and took post in front of the door. He was in control, Captain Candy in Control.
I've come up with a few extra ideas I'll put into place this year. Many are practices we've always done like flashlights, phones, etc., but this list will keep it all together.Because in all areas, as he ages and gets more verbal, taller, smarter - most people (and even us) take him at face value, as he looks or talks. He often fools others into thinking he has it all together. Don't get me wrong, this is exactly what my long hours of research, working with him, getting him extra help, and talking talking talking to him have paid off with (and won't cease any time soon). I'm very proud of this kiddo and what he's moved past. But, we need these items in place for that reason. We cannot take anything about his safety for chance. Underneath, he's still ridden with anxiety and fight-or-flight responses to stress and fear. During these times, he loses language and shrieks and runs, getting physical with anything willfully blocking his path. This is exactly what I want in a stranger-danger situation, but Halloween not so much. His shrieks will fit right in to the neighborhood din, I'm afraid.
Day(s) Before:
- Plan maps and gather all supplies, laying the path for a smooth Halloween day
- Let G write and check off items on To-Do List
- Ask G if he wants to go Trick or Treating, and how long he thinks
- Plan route for trick or treating
- Let G draw the Route Map with street names
- Label the homes with neighbor's names and let him decide if he wants to go to unknown neighbors
- Draw in Safe Points at close friends' home where he can go if he gets lost or scared
- Pass out copies of map to whole family, whether they'll be with him or not
- Decide if he'll accompany other groups of friends walking
- Phones/walkie-talkies* for all
- Flashlights for all
- Fresh/charged batteries for above
- Wear safety reflectors
- Carry a whistle around his neck in case he gets lost or scared and walkie-talkie doesn't work
- Carry whistle of another tune for Dad to for G to locate**
- Ask G where he wants Dad to stand while he goes to porches
- Have Dad ask him every 15 minutes if he wants to continue to avoid overdoing it and meltdowns mid-route
- If Dad notices G is weary but he denies it, remind him that he can hand out candy at home or sort his candy
- Have fun!
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The Big Haul, time to sort! |
** Several items overlap with redundancy. I've found that if I give G one way to communicate, he may not remember to use it. If I give him 2-3, he may find the right method that suits him. Example: If he's running, he may use the whistle instead of trying to figure out the walkie-talkie.
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Pumpkin-Carving Day 2011 with DMUM, an amazing Autism Treatment Fundraising group of University of Michigan Students |
Monday, October 22, 2012
One Step Forward, Two Steps Back
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I love that this sign goes with my cha-cha motto |
5,000 steps forward, 500 steps back
1,000 steps forward, 5,000 steps back
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http://www.zazzle.com/256853555741858037 |
...and so on, You get the idea. Not a walk in the park.
Just like everyone else, we're each fighting our own battles.
a mathematician.
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http://www.zazzle.com/235570888085018672 |
Then again, maybe not.
I try my best not to dwell
on subtractions,
focus only on additions.
Go forward.
Take giant steps
when you're up to it.
Accept that no one knows what you'll step into until you do.
turn up the volume, kick off your shoes, sing loudly, laugh, dance!
Let it all out!
Don't tally your problems.
Count your lessons. Learn.
Press onward.
Your journey, your strength, is what counts.
YOLO!
These cowboys look like the're having a blast!
I'm not a big country music fan, but this sure is a romantic idea to with your sweetie. :)
Thursday, October 4, 2012
Quiver and Quake
Tuesday, September 18, 2012
Artsy Autsy
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Wednesday, August 1, 2012
Data LamBasted
Here's a sure sign that your name is on a random database with really bad information. This came for my husband today...and his birthday was 3 months ago. Teehee.
It's the thought that counts, right?
Friday, May 11, 2012
I'm All Ears, Honey
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Van Gogh's Ear 1888 |
"I can't!"
"Why not?"
"Because this cereal."
"What?"
"This cereal is too loud. It makes it hard to hear!"
Alrighty then. This I can understand. Even we mere mortals with typical sensory processing can relate. Funny how he appears deaf when I call out to him at times, lost in his own world. Strange how he talks so loudly that everyone turns to stare, yet crunchy cereal chewing overtakes his ability to hear Spongebob 5 feet away.
Scooter's sensory issues are a moving target. I never know how he'll react. Even if I followed him around with a notebook - which I do in my head anyway - I'd never discover a pattern, be able to predict his needs. Just when I think I've got him figured out, he switches it up on me.
Scooter was truly bestowed upon me to keep me on my toes. I love to dance to a funky beat; but I'd love to be able to choose my own songs, tempo, bass, treble, balance.
Volume. Pitch. Harmony.
My senses are hyper-focused on your every move, kiddo.
Sensory Assimilation.
Tuesday, May 8, 2012
Easy Cheesy
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See recipes below... |
"I can't find the Sprinkle Cheese!"
Hmmmm...search...translate
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Our newly dubbed Sprinkle Cheese |
You mean the co-jack, orange and white cheese? We don't have any."
Rooting around the fridge, I found his absolute fave smoked gouda.
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We fight over this in our home. Thank goodness for Costco-sized hunks of this delicacy. |
Wow, that was easy!
Today is going to be a great day. :~D
Rainbow cake recipes - I just may have to make these!
http://www.the-girl-who-ate-everything.com/2010/03/because-life-isnt-always-rainbows-and.html
http://iheartcuppycakes.com/2009/04/12/taste-the-rainbow/
Rainbow cake in a jar - awesome teacher/therapist gift!
http://www.hawaiikawaii.net/2012/rainbow-cake-in-a-jar-kawaii-cakes/
Monday, May 7, 2012
Superpowers, Defined
Read this heartwarming post from a gem of a little sister.
My Brother Has Real Superpowers | hereirawr
I've shared books, classes, support groups and constant reminders with my older children in helping them to understand and cope with their little brother's autism (etc.). I know I'll share this post too. I've recently begun searching for just the right book to open the door of awareness and hope for my special Scooter. I don't think he has awareness yet of his differences, despite my openness and many attempts to explain his autism to him both casually and formally. I think the visual and tactile sensory input from a book, app, or video may help him to "see" himself.
I'd love suggestions on methodology or recommendations on books or other media. He needs to be aware before first grade. It will be my goal for the summer. He needs to know that he is not alone in his struggles, differences,and above all- superpowers.
Friday, April 27, 2012
Cannibals at Dollar Tree
Scooter's cannibalized child's rhyme:
This little piggie went to Dollar Tree
This little piggie stayed home
This little piggie ate some ham
This little piggie got none
and this little piggie
played wii wii wii all day long!
Monday, April 16, 2012
Expressive #&?#@%+! Language
I found Scooter trying to get rid of the evidence as I came in. Yuck - eating off the floor.
15 minutes later he was lapping at his leftover cereal milk like a kitty.
Yup, these are the proud moments I live for.
Sigh.
Shit.
Idiom-atic
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Pastry Case I, 1961-2 |